chronic illness

Looking For The Light

It has been a long time since I have been here. So long that I have been questioning if I ever should return, if I was even missed, is there even a point moving forward with this little online place. I am ashamed to have neglected it. 2015 was a challenging year for me and mine, and I had high hopes that 2016 would be better. There are still plenty of reasons to remain hopeful, but at the same time my family and I are being challenged in monumental ways.

Scared. And blessed. Trying to sort it all out, make sense of it, breathe and trust.

With so many responsibilities and distractions, I haven’t had the opportunity to capture anything exciting with my camera, at least anything far from home. No matter how tired, pained or stressed I am feeling, I can always count on my garden to provide what I seek.

I hope you find the colors, textures and beauty as lovely as I do.

Thanks for stopping by and sticking with me.




deep purple calla lily

Being Human

“The essence of being human is that one does not seek perfection.”

~George Orwell

spring blossom

It was not my intention to be away for so long; I guess I have been busy with being human~fragile, at times sad, hopelessly breakable. I have been a little dark cloud amid the magnificent late spring sunshine.

I have experienced what has felt like a month-long flu, which has made for miserable mornings and even more miserable afternoons. Sleep has been my only escape. By now I should be used to what lupus and fibromyalgia do to me, but I’m not. The pain has numbed my brain. Projects have been set aside. My camera goes untouched. I started my fiction novel in March, and I haven’t written a single word in weeks. I am also going through some intensely personal things; complicated things that hurt, things I can’t really talk about for the sake of others, things for which there is no other solution than to let go and move forward when all I feel is frozen.

My mind drifts to the celebratory passages that come with this time of year, the ones that create the deliciousness, the essence, of life. Graduations. Vacations. Bliss. It brings me to what illness has taken away, what I don’t get to experience in the here and now. As a young girl and later into my teens, I looked ahead into a future and saw a brave and inventive life. Today, on those days when I choose, and on those days when I literally have to fight for happiness, I am fueled by the thought that I still have a chance to create moments and milestones, that I still have time for bravery and invention.

There is always the future. Something different, something better, than what exists today.

Pain is both mask and unveiling. I have longed to hide away and not be seen, but when I can’t, I often successfully force a laugh or smile. However, healing doesn’t dwell in this well versed facade. It can only be born from the tears, vulnerability and freedom that come with being honest. I will get through this, just like I have before. As a sick person, I often feel like my circle of support and love is constantly growing smaller. In some ways it is true~some friends lose patience or drift away altogether~but my circle remains unbreakable in the most significant ways; my marriage is strong, my family unwavering, and my dearest friends will always understand. Projects will always be there waiting, and to them I will most definitely return.

I just need to feel better and get on with living, with both arms wide open.

I will.

King Sago Palm Branch

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